Supporting individuals living with sickle cell disorder in Kent and Medway
We provide education, counseling, medical support, and community-driven programs to improve the quality of life for people affected by sickle cell. Together, we can create a world where everyone with SCD receives the care and hope they deserve.
About us
We Can Work Together to Create a Better Future.
We are a non-profit organisation dedicated to raising awareness, preventing complications, and offering direct support to individuals living with Sickle Cell Disorder.
For years, our team of passionate advocates, medical volunteers, and caregivers has been working to empower patients and families through education, community programs, and medical assistance.
what we do
Our Key Services
Free Counselling & Guidance
Emotional and psychological support to help patients and families cope with Sickle Cell.
Patient Support Groups and Community
We provide a safe space to share experiences, learn, heal and grow together.
Medical Assistance & Referrals
We provide direct connection to clinics, specialists, and emergency support.
Health Education Programs
Community outreach and awareness campaigns to promote early diagnosis and prevention.
Balanced diet and hydration
We provide a nutritious, balanced diet and hydration to boost the immune system of Sickle Cell Patients to help them fight against weakness
What you need to know
Sickle Cell Awareness
About Sickle Cell Disorder
Sickle Cell Disorder is an inherited blood condition that affects the shape and function of red blood cells. Instead of being round and flexible, the red blood cells become hard, sticky, and shaped like a crescent or “sickle.” These abnormal cells can block blood flow, leading to pain, infections, anaemia, and damage to organs. Sickle cell is a lifelong condition, but with early diagnosis, proper medical care, healthy lifestyle choices, and emotional support, individuals living with the disorder can live full and productive lives.
What causes sickle cell disorder?
Sickle cell disorder is caused by an inherited gene passed from both parents to a child. A person will only have sickle cell if they inherit the sickle cell gene from both parents. If only one parent carries the gene, the child may have the sickle cell trait but not the disease.
Is sickle cell contagious?
No. Sickle cell disorder is not contagious. It cannot be spread through contact, blood transfusion, sharing food, or close interaction. It is strictly a genetic condition passed from parents to their children.
What are the common symptoms of sickle cell disorder?
Common symptoms include pain crises, fatigue, anemia, frequent infections, swelling of the hands and feet, delayed growth in children, and episodes of shortness of breath. Symptoms can vary in severity from person to person.
Can sickle cell disorder be cured?
Currently, the only known cure is a bone marrow or stem cell transplant, which is not suitable for everyone and requires a matching donor. However, many treatments are available to manage symptoms, reduce pain crises, and improve quality of life.
How can pain crises be prevented or reduced?
Pain crises can be reduced by staying well hydrated, avoiding extreme temperatures, managing stress, getting enough rest, and following prescribed medical treatments. Regular medical checkups and early treatment of infections are also very important.
Can people living with sickle cell live a normal life?
Yes. With proper medical care, education, emotional support, and lifestyle management, many people living with sickle cell disorder attend school, work, build families, and live fulfilling lives.